Tom’s Trust was set up in July 2011. It is a legacy to Tom Whiteley, who died aged 9 of a brain tumour. Through this charity his memory will live on and will change the lives and outcomes of children with brain tumours.
Brain tumours are the most common cause of cancer deaths in children under 15 and account for more than a quarter of all childhood cancers. This a devastating disease and we are dedicated to supporting this group of children and their families from the point of diagnosis, through treatment and after treatment offering them the best rehabilitation, changing their outcomes and lives
Children with brain tumours need support from diagnosis to outcome and beyond. The support of a complete rehabilitation service has been missing from the care they are given at NHS hospitals and this is where TOM’S TRUST comes in.
Working with Addenbrooke’s Hospital, Cambridge and in a pioneering collaboration with two other charities (Camille's Appeal and Anna's Hope) we have created and launched a dedicated and pioneering rehabilitation service called ‘Brainbow’ .
This rehabilitation service consists of
- Clinical Psychologists
- Occupational Therapist
- Speech and language therapist
- Care Co-ordinator
The work we do ensures that children like Sophie have the chance to reach their full potential in life.
Our mission is to become a beacon of best practice and improve the access, consistency and the quality of rehabilitation services for all childhood brain tumour patients and their families across the UK. Our work will not stop until all children with brain tumours have access to this type of service.
Andrew & Deborah Whiteley