Tom’s Trust was set up in July 2011. It is a legacy to Tom Whiteley, who died aged 9 of a brain tumour. Through this charity his memory will live on and we know how proud he would be of the work that we do and the difference we make in his name.
Brain tumours are the most common cause of cancer deaths in children under 15. This a devastating disease on all levels and we are dedicated to supporting this group of children and their families from the point of diagnosis, through treatment and after treatment offering them the best possible rehabilitation support available.
Children with brain tumours need support from diagnosis to outcome and beyond. The support of a complete rehabilitation service has been missing from the care they are given at NHS hospitals and this is where TOM’S TRUST comes in.
Working with Addenbrooke’s Hospital, Cambridge and in collaboration with two other charities (Camille's Appeal and Anna's Hope) we have created and launched a dedicated and pioneering rehabilitation service called ‘Brainbow’ . This service consists of
- Clinical Psychologist (Tom’s Trust funded)
- Occupational Therapist
- Speech and language therapist
- Care Co-ordinator
Our fundraising initiative is now focused on raising further funds for a second Clinical Psychologist at Addenbrookes Hospital, Cambridge as well as working with a second UK hospital to fund a similar essential service to that in place in Cambridge. Our work will not stop until all children with brain tumours have access to this type of service.
Andrew & Deborah Whiteley