Family walks 192 miles in coast-to-coast challenge
A family is set to walk 192 miles in a huge coast-to-coast challenge across the UK in memory of their “bright and creative” daughter and sister who died of a brain tumour at the age of just eight. Emily Smith tragically died in August 2022 within two weeks of her diagnosis after an MRI revealed […]
Big moves, a new service and a city with a big heart
Rebecca Wood, the CEO of Tom’s Trust, recently spoke about the exciting news of the impending launch of the new service at Alder Hey Children’s Hospital in Liverpool. As a leading figure in the charity sector, Rebecca is passionate about improving the lives of children with brain tumours and their families. In this interview, she discusses the impact that the new centre will have on the lives of those affected by brain tumours, and the vital role that Tom’s Trust has played in making this project a reality.
The need for psychological support for children with brain tumours
Ben was diagnosed with a brain tumour as an infant and underwent treatment at Alder Hey Hospital. However, he had very little access to psychological support during his treatment and recovery, which had a profound impact on his mental health in later years. The impact of this lack of psychological support can have a lifelong […]
New Liverpool service
A children’s charity has started a new service to give mental health support to children with brain tumours in the North West, as well as their families. Tom’s Trust is the UK’s only charity dedicated solely to providing psychological support for children with brain and central nervous system tumours and their families. The charity recruits […]
Mimi and Flint Clarke awarded for their contributions to Tom’s Trust
Tom’s Trust Young Ambassadors Mimi Clarke and her brother Flint Clarke have both won awards for their incredible efforts in supporting Tom’s Trust at the Inspirational YoungStars Awards. Mimi, 13, and Flint, 15, have been active in supporting the work of Tom’s Trust, which provides mental health support to children with brain tumours and their […]
“She was the sunshine in our family.” Emily’s story, as told by her parents.
This is the story of Emily Smith, a little girl who died of a brain tumour last year when she was just eight years-old. Her parents, Andy and Sarah Smith, have bravely shared their story in the hopes of raising awareness of brain tumours in children, and the work we’re doing at Tom’s Trust. The […]
Tom’s Trust June Brain Tumour News
World-first trial for paediatric brain cancer A world-first clinical trial has been launched at Sydney Children’s Hospital, Randwick for children with ependymoma – a rare and devastating form of paediatric brain cancer. The Deflexifol® At Relapse Trial (DART), proudly supported by Kids with Cancer Foundation, is being led by Professor David Ziegler and Dr Marion […]
Lincolnshire haulage company jump from 13,000ft
A Lincolnshire haulage company team have jumped 13,000ft from a plane to raise money for children with brain tumours. The team of 10 from Turners Soham (Bicker depot) completed the skydive in a bid to fund mental health support for children with brain tumours, as well as their families, through the Cambridge-based charity Tom’s Trust. […]
Cambridgeshire surgeon completes the toughest footrace on Earth
A surgeon from Cambridgeshire has completed ‘the toughest footrace on Earth’ in a bid to help children with brain tumours. James Tysome, a consultant ENT and skull base surgeon at Addenbrooke’s Hospital, spent six gruelling days crossing through 250kms of sand dunes, while scaling rocky mountains and white-hot salt plains, all to raise money for […]
In the headlines: Notable brain tumour developments this May
3D genome mapping may lead to the treatment of deadliest paediatric brain tumours Researchers led by Sanford Burnham Prebys assistant professor Lukas Chavez, Ph.D., are leveraging the latest technology to take a never-before-seen look at ependymoma, one of the deadliest paediatric brain tumours. By visualising how the genome is organised and arranged within tumour cells, […]
‘Tri for Tom’ raises £3,000 for charity
A Cambridge gym team has completed a gruelling 400km challenge in memory of a local boy who died from a brain tumour, raising more than £3,000 for charity. As part of the ‘Tri for Tom’, the group from F45 gym cycled all the way to Brighton and back, while stopping at other F45 gyms in […]
Our ‘Tri for Tom’ team in the news
Listen to our Tri for Tom team on Cambridge 105. Of the team of four, one of the team members is Andrew Whiteley, the dad of Tom Whiteley who died at the age of nine from a brain tumour in 2010. Andrew set up Tom’s Trust in memory of Tom with Tom’s mum, Debs. Also […]