National Lottery funding enables leap forward in strategy for children’s brain tumour charity, Tom’s Trust
The National Lottery Community Fund has granted children’s brain tumour charity Tom’s Trust more than £400,000, enabling a big leap forward in its strategy to support more families. The incredible news was revealed to the charity after they applied for £427,000 of funding from the organisation’s Reaching Communities Fund over four years for three vital […]
Tom’s Trust celebrates NHS funding announcement
Press release by Cambridge University Hospitals NHS Foundation Trust. Brainbow, a rehabilitation service for children and young people with brain tumours based at Addenbrooke’s celebrated its 10th anniversary on Friday. Brainbow was founded as a collaboration between CUH and three visionary local charities – Anna’s Hope, Camille’s Appeal and Tom’s Trust. Later the Joshua Tarrant […]
A decade of Tom’s Trust in Cambridge: an interview with the clinical psychologists
As Tom’s Trust celebrates the NHS taking over the funding of our Cambridge psychologists, we interviewed the team – Angela Kirby, Lead Clinical Pyshologist, Dr Philippa Lewington, Clinical Psychologist, and Mariana Decheva
Studies reveal ADHD drug improves quality of life for child survivors of brain tumours
A repurposed ADHD medication could change the lives of children who have survived a brain tumour, after new UK studies reveal improvements in brain functioning and improved quality of life for patients. The two recent studies: Methylphenidate improves cognitive function and health-related quality of life in survivors of childhood brain tumours and Parental Perceptions of […]
Big moves, a new service and a city with a big heart
Rebecca Wood, the CEO of Tom’s Trust, recently spoke about the exciting news of the impending launch of the new service at Alder Hey Children’s Hospital in Liverpool. As a leading figure in the charity sector, Rebecca is passionate about improving the lives of children with brain tumours and their families. In this interview, she discusses the impact that the new centre will have on the lives of those affected by brain tumours, and the vital role that Tom’s Trust has played in making this project a reality.
Ben’s story: The need for psychological support for children with brain tumours
Ben was diagnosed with a brain tumour as an infant and underwent treatment at Alder Hey Hospital. However, he had very little access to psychological support during his treatment and recovery, which had a profound impact on his mental health in later years. The impact of this lack of psychological support can have a lifelong […]
New Liverpool service: Children’s charity opens new service to give mental health support to children with brain tumours in the North West
A children’s charity has started a new service to give mental health support to children with brain tumours in the North West, as well as their families. Tom’s Trust is the UK’s only charity dedicated solely to providing psychological support for children with brain and central nervous system tumours and their families. The charity recruits […]
“She was the sunshine in our family.” Emily’s story, as told by her parents.
This is the story of Emily Smith, a little girl who died of a brain tumour last year when she was just eight years-old. Her parents, Andy and Sarah Smith, have bravely shared their story in the hopes of raising awareness of brain tumours in children, and the work we’re doing at Tom’s Trust. The […]
Tom’s Trust June Brain Tumour News
World-first trial for paediatric brain cancer A world-first clinical trial has been launched at Sydney Children’s Hospital, Randwick for children with ependymoma – a rare and devastating form of paediatric brain cancer. The Deflexifol® At Relapse Trial (DART), proudly supported by Kids with Cancer Foundation, is being led by Professor David Ziegler and Dr Marion […]
In the headlines: Notable brain tumour developments this May
3D genome mapping may lead to the treatment of deadliest paediatric brain tumours Researchers led by Sanford Burnham Prebys assistant professor Lukas Chavez, Ph.D., are leveraging the latest technology to take a never-before-seen look at ependymoma, one of the deadliest paediatric brain tumours. By visualising how the genome is organised and arranged within tumour cells, […]
Paediatric Brain Tumour News for April: Advancements and Updates
Researchers from the University of Cambridge will pioneer new, minimally invasive techniques for the diagnosis of medulloblastoma, one of the most common cancerous childhood brain tumours. The funding, provided by The Brain Tumour Charity, will enable scientists to explore a new method of identifying the disease known as wingless medulloblastoma (WNT), which is typically difficult […]
In the headlines: Notable brain tumour developments this March
The article reports that a new report by a group of MPs in the UK highlights the lack of progress in improving survival rates for children with brain tumours over the past few decades. The report calls for urgent action to prioritise brain tumour research and improve access to innovative treatments. The MPs also call […]