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Information stream

Brain tumour information

Nurse high-fiving a child

In 2024 Tom’s Trust will be launching a set of leaflets, videos and website pages featuring key information. This information section of our website will serve as an invaluable resource for parents, guardians, friends, siblings, professionals, key workers and schools involved with children diagnosed with brain tumours, as well as the children themselves.

We have begun publishing content with our new Sibling Toolkit, which you can download today, and will begin to develop other content over the course of the year.

Get the information you need about brain tumours

child in hospital with sibling leaning on shoulderSibling Toolkit

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Our Sibling Toolkit provides:

– Guidance on supporting the emotional wellbeing of  the siblings of children with brain tumours.

– Strategies for parents, guardians, and friends to help children cope with their sibling’s diagnosis and treatment.

– Resources for individuals to understand and support their loved ones.

– Advice for individuals on how to take care of their own mental health and learn coping strategies.

– Guidance for schools on providing appropriate support for the siblings of children with brain tumours.

– Guidance for a range of professionals and key workers who have input into the care of a child with a brain tumour, who may want information about supporting a family’s mental wellbeing at various stages on their journey.

Little boy talking with psychologist

Mental health support

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Our mental heath support will provide:

– Guidance on supporting the emotional wellbeing of children with brain tumours.

– Strategies for parents, guardians, and friends to help children cope with their diagnosis and treatment.

– Resources for individuals to understand and support their loved ones.

– Advice for individuals on how to take care of their own mental health and learn coping strategies.

– Guidance for schools on providing appropriate support for children with brain tumours.

– Guidance for a range of professionals and key workers who have input into the care of a child with a brain tumour, who may want information about supporting a family’s mental wellbeing at various stages on their journey.

teddy bear with grey background

Bereavement support

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Our bereavement support will provide:

– Strategies and resources for families coping with the loss of a child to a brain tumour.

– Information and signposting on grief counselling and support for parents, siblings, and friends.

– Information and signposting for those who receive a terminal diagnosis.

Psychologist talking to young girl

Facts and statistics

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Our facts and statistics will cover:

– Comprehensive information on the prevalence and impact of childhood brain tumours.

– Statistics related to survival rates, treatment outcomes, and long-term effects.

A doctor with a mother and child

Diagnosis and treatment

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Diagnosis and treatment information will include:

– Detailed explanations of the diagnostic process.

– Information on various treatment options and their side effects.

– Insights into the challenges children face during treatment.

 

Little girl with pigtails holding dads hand walking to school

Beyond treatment

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Information on what happens beyond treatment:

– Guidance on palliative care and quality of life considerations.

– Strategies for reintegrating children into school and daily life after treatment.

Brain tumour neurological pathway

Brain tumour types

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Information on brain tumour types such as:

– In-depth sections on different types of brain tumours, including prognosis, treatments and tests associated with each type.

– The demographics of children affected by each brain tumour type.

Psychologist looking at patient whilst holding notebook and pen

The psychologist’s role

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This section will provide:

– Information about our dedicated clinical psychologists and how they support families in coping with the mental health challenges associated with brain tumours.

– Stories of families we have helped over the past few years.

Contact us

We are in the initial stages of putting this vital content together and would welcome any opinions, advice or feedback from our supporters and families. If you would like to get in touch about our new information stream, please fill out the below form.

Basic contact form

 

 

 

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