Supporting your child’s wellbeing as routines change
Written by Amy Cottrill, Assistant Psychologist and Family Liaison Co-ordinator at Tom’s Trust. In this blog, Amy shares practical tips to help parents and carers of children with brain tumours support their child’s wellbeing, manage worries and navigate changes in routine. New routines and transitions can bring a mixture of emotions for children and […]
Brighter Futures: Our new campaign to raise £5 million over 5 years
Exciting things are happening at Tom’s Trust – we have launched a new campaign! It’s called Brighter Futures, because that’s what we want to achieve. By supporting the whole family, we will help them to create their brightest possible future beyond diagnosis. To deliver Brighter Futures, we need to double our income. Raising £5 million over the […]
Family recalls daughter’s life-changing diagnosis this Brain Tumour Awareness Month
March is Brain Tumour Awareness Month, and for thousands of parents across the UK, it will be a time to reflect on their child’s devastating diagnosis. Approximately 500 children and young people aged 0-19 are diagnosed with a brain tumour each year in the UK – that is 10 a week. Tom’s Trust, the UK’s leading charity […]
Three ways you can help Tom’s Trust today
What we do We are dedicated to providing psychological support to children with brain tumours and their families. One of the mums we support said: “When my son was first diagnosed with his tumour, my fear of the unknown was so great. I was so worried that I didn’t understand anything about brain tumours, even […]
When a child is diagnosed with a brain tumour, who’s helping the helpers?
More and more grandparents are now involved in raising children for the second time in their lives. This Brain Tumour Awareness Month, we’re shining a light on the impact of brain tumour diagnosis and treatment on the whole family, including the parents of parents. For children with brain tumours, grandparents are often the quiet, unseen […]
Tom’s Trust partners with Recallify app to launch pilot study – and invites you to take part
Tom’s Trust are supporting an exciting new pilot with Recallify, an AI powered app built to help provide cognitive support, specifically for young people with neurological or neurodevelopmental conditions. Survivors of paediatric brain tumours face the worst long-term outcomes of any cancer group, with many going on to experience life-long cognitive challenges. That’s why we’re […]
Trustees’ Week 2025
This Trustees’ Week, we are sharing the important work our trustees do. A trustee oversees a charity’s strategy, ensures it fulfils its mission, manages funds responsibly, complies with laws, and acts in the charity’s best interests without personal gain. Our eight trustees provide their time and expertise voluntarily to Tom’s Trust, and we are incredibly […]
Leave a gift in your Will to Tom’s Trust
This Remember A Charity Week (8-14 September) we would like to ask you to consider leaving a gift to Tom’s Trust in your Will. We are so grateful to everyone who chooses to include a gift in their Will to help children and families across the UK who are facing a child’s brain tumour diagnosis, […]
ADHD medication & children with brain tumours: follow up study
In 2019 the Paediatric Neuro Oncology team at the Great North Children’s Hospital in Newcastle, led by Dr Sarah Verity, Clinical Neuropsychologist, researched how an ADHD medication, methylphenidate, might be used to support children with brain tumour impact. The studies were partially funded by Tom’s Trust. Now the team have published new findings after they […]
An interview with Caitlin Gray, Tom’s Trust assistant psychologist at Addenbrooke’s, Cambridge
“A supported transition from a child-centred healthcare system to an adult-oriented one can make a massive difference to a young person diagnosed with a brain tumour. It can improve their confidence in their ability to manage their health, their long-term health outcomes, and their health-related quality of life.” Caitlin Gray is our Tom’s Trust Assistant […]
Father’s mental health by our clinical psychologist, Dr Emily Townsend
This Men’s Health Week, we want to take a moment to acknowledge a group whose voices are underrepresented in both the hospital environment and research: the fathers, stepfathers, grandfathers and male caregivers of children with brain tumours. We are lucky to work with some incredible male caregivers, and we want to give their experiences their […]
Meet our CEO, Rebecca Wood
Our CEO, Rebecca Wood, joined Tom’s Trust in 2020, following a career spanning 25 years in senior roles at fast-growing charities. For 17 years she was CEO of Alzheimer’s Research UK, while there she grew the organisation from a team of two to over 70 employees and left it a multi-million-pound income charity. This allowed […]